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Turner syndrome is a chromosomal condition that is caused by complete or partial absence of the second sex chromosome. It affects women and girls exclusively, and there are common characteristics that are a result of the partial or failed development of one of the sex chromosomes, according to Leon.
That's what inspired Leon to help form a local support group for women like her. The Minnesota chapter of the Turner Syndrome Society provides a resource for women or parents of girls with Turner syndrome to learn from and support one another. And this year the group is organizing Saturday's fundraising and awareness walk in Women Adidas Tracksuit Bloomington.
has trouble hearing, has a skeletal abnormality and a deformity in her wrists, among other issues. But being a part of the group, and participating in the Turner Syndrome Society's national conference, continues to provide her with information that is beneficial as she ages and continues to cope with her symptoms. Leon also learns how medical advancements are helping to diagnose and treat girls at younger ages, and helping them overcome the developmental challenges presented by Turner syndrome, Yellow Adidas Hoodie
fundraising walk is Saturday in Bloomington
Turner syndrome, Leon is a bit shorter than an average female. When she was a teenager her height didn't seem unusual to her family, as her mother was short, she explained. Little was known about Turner syndrome, and it wasn't until her mother heard about it on a radio program that it was considered as a possible cause of Leon's health issues growing up. She was diagnosed at age 16, she noted.
Following the walk, members of the Minnesota chapter will gather at the Hyland Visitor Center for a luncheon and presentation by Dr. Kimara March of the University of Minnesota cardiovascular division.
Advances in medical Turner syndrome treatments only benefit girls born with it if they are diagnosed, she noted. There's better knowledge of Turner syndrome amongst doctors, but "we have a long ways to go in getting the message out," Leon said.
With the diagnosis, Leon's family had an explanation for her health issues, but they didn't have a cure. And Leon didn't have classmates to commiserate with. She didn't meet another woman with Turner syndrome until she was 21, she noted.
Julie Leon didn't benefit from the medical knowledge and expertise that is benefitting girls diagnosed with Turner syndrome today, but she's determined to ensure that the one in 2,500 girls affected by it continue to have the benefits she didn't.
Leon is helping to organize the inaugural Turner Syndrome Society fundraising walk Saturday morning at Normandale Lake in Bloomington. The walk which includes entertainment, a prize raffle and an educational presentation may be in Leon's backyard, but she expects plenty of families to travel to Bloomington from around the state, uniting a group of women and girls who are part of the estimated 71,000 females in the United States afflicted with Turner syndrome.
Leon, 50, still benefits from the support group and the work of the Turner Syndrome Society more than three decades after her diagnosis. She knows how Turner syndrome has affected her life: she Adidas Pink Crop Top
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